A big part of the research for PKU comes from the PKU aliance. If you wish to donate visit here.
At this website the research goes directly towards PKU. We don't recieve the most funding through other organizations because PKU is treatable and not common, but we could go so far! We need a cure for these kids. Both Pete and Nella will have to be on strict diets the rest of their lives and buy wacko expensive formula. They also have high chances their children may get PKU depending on who their spouse is.
Some recent research has studied the effects of PHE on the brain of people with PKU. Other studies have worked on capsules that will lessen the requirement of special dieting for PKUers.
At this website the research goes directly towards PKU. We don't recieve the most funding through other organizations because PKU is treatable and not common, but we could go so far! We need a cure for these kids. Both Pete and Nella will have to be on strict diets the rest of their lives and buy wacko expensive formula. They also have high chances their children may get PKU depending on who their spouse is.
Some recent research has studied the effects of PHE on the brain of people with PKU. Other studies have worked on capsules that will lessen the requirement of special dieting for PKUers.